{"product_id":"entanglements-of-rare-diseases-in-the-baltic-sea-region-hardcover","title":"Entanglements of Rare Diseases in the Baltic Sea Region - Hardcover","description":"\u003cdiv\u003e\u003cp style=\"text-align: right;\"\u003e\u003ca href=\"https:\/\/reportcopyrightinfringement.com\/\" target=\"_blank\" rel=\"nofollow\"\u003e\u003cb\u003eReport copyright infringement\u003c\/b\u003e\u003c\/a\u003e\u003c\/p\u003e\u003c\/div\u003e\u003cp\u003eby \u003cb\u003eMalgorzata Rajtar\u003c\/b\u003e (Author), \u003cb\u003eKatarzyna E. Król\u003c\/b\u003e (Author), \u003cb\u003eAnna Chowaniec\u003c\/b\u003e (Contribution by)\u003c\/p\u003e\u003cp\u003eAlthough rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of \"rare\" or \"chronic\" disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.\u003c\/p\u003e\u003ch3\u003eAuthor Biography\u003c\/h3\u003e\u003cp\u003e\u003c\/p\u003e\u003cp\u003eMalgorzata Rajtar is associate professor and head of the Rare Disease Social Research Center at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.\u003cbr\u003eKatarzyna E. Król is PhD student at the Graduate School for Social Research at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.\u003c\/p\u003e\n            \u003cdiv\u003e\n\u003cstrong\u003eNumber of Pages:\u003c\/strong\u003e 224\u003c\/div\u003e\n            \u003cdiv\u003e\n\u003cstrong\u003eDimensions:\u003c\/strong\u003e 0.63 x 9 x 6 IN\u003c\/div\u003e\n            \u003cdiv\u003e\n\u003cstrong\u003ePublication Date:\u003c\/strong\u003e November 15, 2023\u003c\/div\u003e\n            ","brand":"Books by splitShops","offers":[{"title":"Default Title","offer_id":53486629781811,"sku":"9781666942385","price":198.0,"currency_code":"USD","in_stock":true}],"url":"https:\/\/s3xxpj-vy.myshopify.com\/products\/entanglements-of-rare-diseases-in-the-baltic-sea-region-hardcover","provider":"The Celestial Starlit Phoenix ","version":"1.0","type":"link"}